If you’re wondering about life with Multiple Sclerosis (MS) and the prospect of finding employment, I’m here to guide you through this journey. MS is a chronic condition that can affect the central nervous system, leading to a range of symptoms like fatigue, mobility issues, and cognitive changes. Different folks experience it differently, but it often means adjusting your daily routine, including how you work.
Now, when it comes to work, those with MS can face a set of unique challenges. Fatigue might make full-time jobs daunting, and physical symptoms could require a workspace with special accommodations. But this isn’t just about the physical side of it; there are emotional and social obstacles too, like navigating the stigma or disclosing your condition to employers.
Here’s some good news though: there are laws in place designed to protect people with disabilities in the workforce. The Americans with Disabilities Act (ADA), for instance, ensures you have equal opportunity and access to workplace accommodations. So you’re not alone, and there are systems set up to back you up.
In my opinion, beyond legal protections, a supportive work environment is crucial. It’s often about finding an employer who values your health and productivity. And while it can be challenging to find such workspaces, they do exist, and there are strategies to help you identify them.
Preparing for the Job Hunt With MS
If you’re ready to start looking for a new job or reenter the workforce with Multiple Sclerosis, it’s crucial to begin with a solid plan. I’m going to walk you through some steps to help prepare you for the job hunt while managing your MS.
First up, a thorough self-assessment. This isn’t just about listing your professional qualifications; it’s also crucial to be honest about how MS affects you. Think about the kind of work environments, tasks, and schedules that align with your energy levels and capabilities.
Updating your resume is next. It’s essential to focus on your abilities and how they can contribute to a potential employer. There’s no need to mention your MS here, but do highlight any adaptive skills or technologies you’ve mastered that could make you a unique asset.
I’d recommend tapping into vocational rehabilitation services. These can offer personalized assistance, including career counselling, job training, and job placement services. They’re designed to help you find employment that suits your individual needs.
And don’t overlook online resources geared toward helping people with disabilities. Websites like the Job Accommodation Network (JAN) and AbilityJOBS can offer guidance and job listings for employers seeking to create inclusive work environments.
Strategies for Finding Suitable Employment
I’m going to share some practical strategies that can make your job search with Multiple Sclerosis (MS) not just possible, but successful. It’s not just about finding any job, it’s about finding the right fit for you.
Identifying accommodating and inclusive employers is your first step. Research companies that have won awards for disability inclusion, and check out their careers page for accessibility statements and employee resources.
You’re going to find out about network-building too. Using support groups and professional networks can connect you with others who are in a similar situation or with employers who value diversity and inclusion.
Don’t worry too much about committing to a full-time position right away. The benefits of flexible work arrangements cannot be overstated. Look for employers offering part-time, job-sharing, or flex-time positions.
Choose something that resonates with you and could support your needs. Exploring part-time, freelance, or remote work options might be the best approach. These types of roles can offer the flexibility you need to manage your health and your career.
Here is a success story.
Sophia: “I worked in a large architectural office where the workload was extensive, but the wages were excellent. Initially, I anticipated staying there for the duration of my career, as I lacked ambition for advancement in the field. My primary focus was on starting a family, something my partner and I had eagerly awaited for two years. However, unforeseen challenges arose; I began experiencing headaches and double vision in one eye, symptoms that led to a diagnosis of multiple sclerosis following medical evaluation.
This news instilled fear within me, though I couldn’t comprehend why at the time. Unbeknownst to me, I was soon terminated from my job, ostensibly due to a purported reduction in staff requirements. Despite attempts to continue working remotely, I felt disheartened and ostracized. The arrival of my baby momentarily shifted my attention away from these setbacks. Yet, another relapse made concealing my condition increasingly difficult.
Turning to the internet for guidance, I embarked on a quest to explore potential avenues for employment, particularly those compatible with my health condition. After extensive research and experimentation, I realized that creating my own website was a viable option. I identified a platform that suited my needs for training and took the plunge.
Now, a year into my journey (which could have been much quicker), I find myself successful in my newfound career. Although I am still in my area of interest, I approach it with a newfound sense of ease and freedom. Moreover, the financial rewards far surpass those of my former architectural role. Working from home allows me to cherish precious moments with my family, indulge in travel, and savour life’s simple pleasures.
By adopting healthier dietary habits and making other lifestyle adjustments, I’ve managed to alleviate my symptoms. Notably, this experience has ignited a newfound sense of ambition within me.”
Maintaining Employment and Managing MS
Now let’s talk about staying employed once you’ve landed the job. It’s not just about getting through the door; it’s about opening it wider every day you’re there. That said, Multiple Sclerosis isn’t taking a day off, so neither can your strategy for managing it while working.
One of the first things you can do is get familiar with workplace accommodations and adaptive technologies. This isn’t just about making your workspace more comfortable, it’s about enhancing your productivity. For instance, ergonomic furniture and speech-to-text software can be game-changers.
You also need to understand the ins and outs of your health care benefits. Health care benefits can be complicated, but knowing what’s covered can save you a lot of headaches — literally and figuratively. If possible, get in touch with a human resources specialist who can guide you through your options.
Communicating with your employer about your condition is crucial. You don’t have to share every detail, but keeping an open line of communication can foster a better working relationship and more support. Remember, you’re protected by law and there’s no shame in requesting what you need to succeed.
Finally, let’s address the balancing act between work and personal care. Cultivating effective self-care and stress management practices will not only improve your work performance but also enhance your overall well-being. Regular exercise, proper nutrition, and sufficient rest are pillars of long-term employment with MS.
To wrap things up, staying employed with MS calls for a proactive approach: leverage workplace accommodations, understand your benefits, communicate effectively, and prioritize self-care. It’s about crafting a work-life balance that empowers you to thrive, despite the challenges. Remember, your first attempt doesn’t need to be your last; you can always adjust your approach down the road.
Elena
